Hunter is being followed by a neurologist because of his 2 crisis and the risk of developmental delays. We met the neurologist, Dr. Rao at our second hospital stay in June 2014. We saw him in his office for the first time 2 months ago and almost everything checked out except he is a little delayed in speech. Dr. Rao is who referred us to the infants and toddlers program.
We had another appointment on Tuesday just as a followup to see how everything was progressing. Good news is Hunter's speech is progressing, bad news is he is still delayed. We didn't have much time to actually talk at his appointment because as soon as we got their Dr. Rao noticed he was sick and asked how he was doing, I mentioned he hadn't eaten as much as he normally would by this time and he insisted we went to the ER to get blood work done and for him to be monitored. The concern is what happens to his body when he goes into crisis and the irreversible damage, the goal is to be proactive and prevent and future crisis... hence, why we went to the ER.
That fiasco needs it's own post.. you can read that (here)
The neurologist told me to call him in a month or so and give him an update on speech therapy and to schedule an appointment in 3 months for another follow up. He also told me that going through infants and toddlers isn't my only option for speech therapy so if I don't like the speech therapist or don't think they are helping enough to call him and we will schedule speech therapy through the hospital. Did I mention I really like Dr. Rao! He gets an A+ rating in my book!
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