Both of my kids have LCHAD; Long-chain 3-hydroxyacyl-CoA dehydrogenase deficiency.
Here is our story.
Thursday, October 16, 2014
Meet Lisbeth- Our New LCHAD Friend
I have had the opportunity to meet some really awesome parents & kids that are going through the same struggles as we are. This is Lisbeth, she was born June 3, 2014 and after spending 3 weeks in the hospital when she was 2 months old she got her diagnosis of LCHAD. Lisbeth also tested positive for LCHAD on her NBS but didn't get those results until after she had her crisis and hospitalization. Her mom blogged the hospital stay, here it is if you want to read it and show some support. Lisbeth's mom also started a facebook page for LCHAD awareness. Go & Like it!
Labels:
friends,
lchad,
lchad stories
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