As a mom to kids with a rare disease, there are days you set out to find others going through the same thing. I have a small group of moms from all walks of life that have LCHAD kids but for some reason I still find myself searching online for happy blogs about kids with rare diseases and let me tell you the sad blogs defiantly outweigh the happy ones. Searching can put you in a dark place but for some reason I still find myself looking.
I read on one blog sick kids are like finding a new car. You never noticed that car until it was specifically pointed out to you and then you see it everywhere. Every where I look I find kids struggling with rare diseases, diseases I had never heard of. It is heartbreaking
I decided to compile of list of blogs that are not overly heartbreaking. Stories of kids with rare diseases but they still look at life as their glass is half full, rather than half empty and depressing all the time.
I hope if your online searching for happy special health needs blogs you come across this post and your day is not so depressing. I hope these blogs leave you in a better mood even though I know first hand how hard some days are.
Epilepsy warrior www.justsayhi.org
Rubinstein-Taybi Syndrome (RTS) braxtonjoseph.com
Tuberous Sclerosis Complex (TSC) www.nelsonfamily2008.blogspot.com
**I will update with more blogs as I come across them, for now I can't bring myself to search anymore
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