We ARE Lucky

After reading a post by The One in a Million Baby and another by Star In Her Eye I decided to put my thoughts into a post. Not long after Hunter's diagnosis and meeting other LCHAD families and even other FOD families did I realize how lucky we are.  But its weird to say we are lucky at all to anyone not dealing with a sick kid.

I use to think lucky was having a healthy baby when really that's not everything, it's all about how you look at life. I could choose to look at everything like "woe is me... why us... etc." but after the initial shock and grieving period I'm over that.  Life is too short to look at everything negatively. So here are just a few things I think make my family lucky.  

We are lucky to know our diagnosis

We are lucky that Alexis has never been sick.

We are lucky that Hunter has only been admitted to the hospital twice.

We are lucky that our kids are ALIVE! (5% of SIDS are caused by Fatty Acid Oxidation Disorders)  

We are lucky that our kids have always been in the 75th-95th percentile for height and weight their entire lives.

We are lucky that at every specialist appointment we went to this year both kids had good reports.

We are lucky that the only delay Hunter has after 2 crisis' is speech and he is doing amazing in speech therapy.

We are lucky for amazing insurance and a flex spending account. (Even though I complain about the bills we do get it could be much, much worse)

My kids are lucky they can eat as much fat as they can.

We are lucky social media is what it is today and we have access to 60+ LCHAD families all over the world.

We are lucky and extremely THANKFUL for our friends and family who have taken interest in LCHAD, learning about it and helping us spread the word and raise awareness.

& last but certainly not least, I am luck they are mine. God could have given these 2 amazing LCHAD'ers to anyone but he chose me and I couldn't imagine my life without them, genetic disorder included. They are making me a better person and I can't wait to see what unfolds in our futures.
      

SIDS statistic source