My Awesome LCHAD Kids: Happy Birthday Alexis!

Dear Alexis,

What a year it has been! You are an amazing kid, an amazing big sister and I am lucky to be your mom. Here's a recap of your third year.

November 2013- We celebrated your 3rd birthday with a party at kids first swim with all of your friends, you loved it! Well almost all of it until we sung Happy Birthday and then you screamed, it was cute!

December 2013- You still don't like Santa, you wont go anywhere near him when we try to visit but you love what he brings you on Christmas! Santa also sent one of his elves to our house to make sure you are listening to your parents and being a good girl, you named him Red.

January 2014- Was the first time your brother was in the hospital, you were so brave! You came to visit him, told him you hoped he felt better and brought him toys to play with.

April 2014- We went to visit the Easter bunny and like Santa you don't want anything to do with the bunny but after some bribery and the third time standing in line we finally got your picture taken with him. This was as close as you would get.

May 2014- You were the best flower girl in Mandy's wedding!

June 2014- Your brother turned one and then he ended up back in the hospital and you were so worried about him and whether he was going to be okay or not. You came to visit and with some coaxing you got close enough to him for a picture (you were scared of all his wires attached and his hospital gown)

August 2014- You started pre school! You love it, most of the summer you weren't sure you wanted to go but after your first day you were hooked, you get so excited to go everyday. You can't ride the bus this year but next year when you go to Pre-K at Conowingo elementary school you will be able to.

September 2014- We got some news we were not expecting, I thought for sure we were only testing you to see if you had LCHAD just to be safe and I thought for sure it would come back you didn't have it and then we got the phone call, saying you had the same mutated genes as Hunter and you officially had LCHAD. My heart was broken for you but you didn't let me stay sad to long, you took it with stride. Although, every day we sit in the car rider loop waiting for your teacher to come out so you can go to school you always say "sooooo I have LCHAD everyday?" which breaks my heart but its good you know about it. Every time you ask for something to eat, you always ask me if it has a lot of fat and if you can have it. I know this disease sucks and I am sorry, we had no idea. I know however that you and your brother have each other and you will live amazing lives and be able to do anything you want. I promise to do everything in my power to keep you happy and healthy.