My Awesome LCHAD Kids: June 2017

Saturday, June 24, 2017

2017 update!

We are long overdue for an update! Alexis has been doing amazing, she just wrapped up Kindergarten and has still has no issues with her LCHAD. Hunter finished up a 2 day a week preschool program and will be going into Pre-K next year. Hunter had a few issues this year and ended up with 2 short hospital stays. Overall, we are very lucky. I just wanted to take a second to thank all our friends and family who support us day in and day out. I know its not always easy to figure out what they can and can't eat but we appreciate it so much!

If this is your first time here make sure to check out how Hunter's diagnosis came about. Quickly followed by Alexis' diagnosis.

Last day of preschool with our favorite teacher!

Hunter & Wyatt's birthday party!

Monday, June 12, 2017

We love sports!

Have I mentioned we love sports! One of the major things you worry about when your baby gets diagnosed is if they will ever be able to play sports?!? It's a legitimate question, will they have enough energy? Will the aftermath of a hot day be too much for them? I'm happy to report both Hunter & Alexis have been doing great with every sport they have tried. The only thing that has come up is when Hunter goes swimming, one day last summer he swam all day long (was acting fine) and had routine blood work the next day. That blood work came back slightly elevated (ck was in the 800s) not a huge deal but we had to get his blood work done the next day to make sure his CK was trending down, which it was. Last week Hunter needed to get blood work drawn, the day before he had gone swimming for a few hours so I decided to get his CK checked. It came back around 250, which most LCHAD families know that is nothing on the scheme of CK's but it's elevated for Hunter. Right now this isn't a concern for us at all, if Hunter decides to become an Olympic swimmer this might become a concern and something we watch more closely.